The Sing Registry

The Genetic Sensorineural Hearing Loss Registry

A Global Longitudinal Observational Study

Discovering New Insights for the Community

With over 100 genes known to cause hearing loss, and many more to be discovered, the Sing Registry is a new observational research study focused on understanding the life-long impact of genetically caused sensorineural hearing loss.

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Tracking Changes over Time

The Sing Registry is a long-term observational research study designed to follow how hearing changes over time and how various treatment options and interventions, such as hearing aids, cochlear implants, or new investigational therapies, may impact those with genetic hearing loss.

Enrolling Participants in early 2020

The Sing Registry is presently being constructed and is expected to be open for enrollment in early 2020.

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What is the Sing Registry?

The Sing Registry is a voluntary observational research study that will allow physicians, audiologists, and the hearing loss community to report data over time to understand how separate forms of hearing loss caused by different genes may exhibit different impacts, such as severity or change over time.

Who Can Participate?

The Sing Registry will be open to any eligible participant who has a suspected or confirmed diagnosis of genetic sensorineural hearing loss in both ears. There are additional requirements that will be reviewed to determine if you are eligible to participate.

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  • Healthcare Professionals
  • Hearing Loss Community
*Required

If you are a health care professional, we are happy to provide you more information about this initiative. We cannot guarantee all interested physicians or clinical audiologists will be eligible to participate in the Registry.

By completing and submitting this form, you give permission to Akouos, the Registry Sponsor, and third party service providers working on behalf of Akouos, to process the information that you provide. You also agree that Akouos and/or its service providers can contact you by email or phone (if provided) regarding the Sing Registry.

Have you or your family member had genetic testing for hearing loss?
This field is required
*Required

If you suspect that you or a family member have a genetically caused sensorineural hearing loss, we are happy to provide you more information about this initiative. Please note that we cannot guarantee all interested parties will be eligible to participate.

By completing and submitting this form, you give permission to Akouos, the Registry Sponsor, and third party service providers working on behalf of Akouos, to process the information that you provide. You also agree that Akouos and/or its service providers can contact you by email or phone (if provided) regarding the Sing Registry.